BREAKING NEWS - Italien erkennt CCSVI offiziell an!

[muse]

Breaking NEWS - Italien legt vor und erkennt CCSVI offiziell an. Es darf BEHANDELT werden!!! http://www.redattoresociale.it/DettaglioNotizie.aspx?idNews=312625


update: Uebersetzer/translater Italian=>Deutsch/English gesucht/wanted!;-)

=====================================================================

Pubblicata oggi 25 Giugno dall' Agenzia... Mehr anzeigen
Redattore Sociale su http://www.redattoresociale.it

Ccsvi nella sclerosi multipla 25/06/2010
DISABILITA’
...L'insufficienza venosa cronica cerebrospinale, “sia riconosciuto come patologia” L’Associazione “Ccsvi nella sclerosi multipla - Onlus” chiede linee guida per diagnosi e terapia. Tabacco: “Lo Stato si faccia carico di recepire quanto la comunità scientifica nel mondo ha già valicato”

ROMA – L’insufficienza venosa cronica cerebrospinale (Ccsvi) venga riconosciuta anche in Italia come patologia a sé stante affinché possano essere stilate in tempi brevi linee guida per poterla diagnosticare e curare al di là della sua correlazione con la sclerosi multipla. È quanto ha chiesto l’associazione “Ccsvi nella sclerosi multipla - Onlus” al ministero della Salute in un incontro appena concluso tra i rappresentati dell’associazione e Alberto Zangrillo, presidente della seconda sezione per il Consiglio superiore di sanità presso lo stesso ministero. “Mentre la scienza fa il suo corso per validare la correlazione tra sclerosi multipla e Ccsvi – ha affermato Tabacco -, contestualmente chiediamo che, poiché la Ccsvi è già stata validata dal mondo scientifico così come è stata validata la sua terapia, lo Stato si faccia carico di recepire quanto la comunità scientifica nel mondo ha già validato e di stilare linee guida rispetto a questa patologia in attesa che la scienza verifichi la correlazione”.

Riscontrata in diverse sperimentazioni in tutto il mondo nelle persone affette da sclerosi multipla, la Ccsvi è una patologia che colpisce le vene cervicali e toraciche che, a causa dell’inspessimento anomalo delle pareti venose, rimuovono poco efficacemente il sangue dal sistema nervoso centrale. Sulla correlazione tra le due patologie in Italia è in corso uno studio i cui risultati, spiegano dall’associazione, sono attesi per la fine del prossimo anno. “L’incontro di oggi è andato molto bene – ha aggiunto Tabacco - Il ministero ha preso atto di questa nostra richiesta”. Sui tempi, però, non ci sono ancora notizie certe. “Su questo non abbiamo avuto indicazioni, ma dal ministero ci hanno fatto sapere che si attiveranno in più brevi”. (ga)
http://www.redattoresociale.it/DettaglioNotizie.aspx?idNews=312625

Nella foto si riconoscono: PINO CUCCI;
il Presidente dell'associazione "CCSVI nella Sclerosi Multipla" FRANCESCO TABACCO;
il Vice-presidente dell'associazione con delega ai rapporti con le sedi associative periferiche DANIELE NOVI;
STEFANIA MASELLI, Consigliere dell'associazione;
ZANGRILLO presidente della seconda sezione per il Consiglio superiore di sanità presso il ministero della salute.
Foto di Daniele Aco A.
Per ascoltare la registrazione dell'incontro: http://www.pinoonline.it/SUD_0625_0152.mp3

Registrazione audio.
All'inizio parlo io e Stefania e poi Tabacco.
parliamo delle raccomandate spedite.
alle 1m e 30 s arrivano i dott. Zangrillo e Dott. Garaci
2m presentazioniDott. Zangrillo Ordinario del San Raffaele di Milano e Dott. Garaci
...Stefania ci presenta
Parlo io...
4m Francesco Tabacco
6m Daniele Novi
7m 20s Stefania
8m Pino
8m 30s Zangrillo parla della commissione e di cosa stanno facendo
14m io: altri 4000 dietro di me
14m Zangrillo parla dell'associazione sm-ccsvi: un solo studio o un paio non bastano.
...mi sta registrando?
18m45s Pino Sì, devo dar conto ai 4000 malati...
18m50s Zangrillo
23m 10s Stefania
23m 20s Zangrillo non un unico strumento...
24m50s Daniele
25m45 Zangrillo
27m30s tutti poi io.
27m45s Zangrillo parla della Russia e dei mercati incontrollabili
29m30s Stefania e viaggio in Germania
32m30s dott. Garaci
33m30s Pino
33m40s dott. Garaci
34m45s stefania
34m50s dott. Zangrillo
35m0s Pino Debba?
35m5s dott. Zangrillo
35m45s Stefania
35m50s dott. Zangrillo se c'è l'indicazione legata ad una patologia vascolar
38m20s Pino: io ho la diagnosi, ma non so a chi rivolgermi...
38m30s me lo dia il numero...
38m40s Zangrillo
40m15s Pino sono i chirurghi vascolari che sono chiusi?
40m20s Zangrillo se esiste una patologia deve essere data la cura.
41m20s Pino io ho la diagnosi
41m30s Zangrillo Zambioni ha trovato la patologia che indicazioni le ha dato?
42m10s Pino Galeotti non mi può operare perchè prima non si prova la correlazione tra la SM e la CCSVI il comitato etico non ha acconsentito a fare altre liberazioni oltre alle 65 già liberate.
42m45s Zangrillo è un problema diverso
43m15 s Pino non trovo 1 solo radiologo interventista in tutto il Lazio disposto
43m20s Zangrillo limitandoci alla patologia vascolare...
46m30s Pino io non ho la SM(bugiardo), ma sicuramente ho la CCSVI...
46m45s zang
47m00s Pino
tutti
47m50s Zangrillo
48m10s Pino è riconosciuta come malattia
49m50s Tabacco e Stefania
50m00s Zangrillo
51m45s Pino Non deve passare l'estate
52m10s Zangrillo E' stato sollevato un'altro problema
52m45s volete fare a meno del neurologo se volete
52m50s Pino Tranquillamente!
53m10s Pino Dove posso fare la diagnosi? e Stefania
54m00s Zangrillo Ci avete investito di un ulteriore problema.
54m45s Pino nonostante l'AISM non ci aiuta a diffondere la notizia
55m00s Daniele
56m00s Pino dopo la Francia il migliore
56m10s Zang e' stata sollevata la questione
57m15s Pino in Italia si spendono 1,6 miliardi di euro per i farmaci per la SM
58m00s bisogna battersi per inserirlo nei LEA
59m05s Stefania con i referti possiamo andare ad un reparto di chirurgia e farci prendere in carico
59m45s Zangrillo daremo in tempi rapidissimi, cercheremo di arrivare a delle linee guida

[muse]

Heute wurde in Rom, CCSVI als Gefässerkrankung anerkannt
Am 25. Juni 2010 traf sich die italienische CCSVI Society mit dem Gesundheitsminister des Landes und es wurde beschlossen, dass CCSVI als eigenständige Erkrankung diagnostiziert werden kann, ohne das diese in Zusammenhang mit MS gebracht wird. Es wurde weiterhin beschlossen, dass Dr. Zamboni seine klinischen Doppelblindstudien zu CCSVI bei MS fortsetzen kann. Obwohl es keinen genauen Zeitrahmen für das Testen und Behandeln von CCSVI gab, versprach der Minister schnell zu agieren.
SAUBER Herr Minister, geht doch!!!

Today-In Rome--CCSVI becomes a recognized vascular condition
Today in Rome, the Italian CCSVI Society met with the Ministry of Health, and it was decided that CCSVI can be diagnosed as a stand alone disease, without being correlated to MS. It was also decided that Dr. Zamboni can go forward with his blinded clinical trials of CCSVI in MS. Although there was no time-line given for testing and treating CCSVI, the ministry has promised to move quickly

here's a google translate of a press release:

The cerebrospinal chronic venous insufficiency, "is recognized as a disease"

The Association CCSVI in multiple sclerosis - Onlus "asks guidelines for diagnosis and therapy. Tobacco: "The State shall take responsibility to implement what the scientific community in the world has crossed"

ROME - The cerebrospinal chronic venous insufficiency (CCSVI) is recognized in Italy as a disease in itself that can be quickly drawn up guidelines to be able to diagnose and treat beyond its correlation with multiple sclerosis. This is called the association "CCSVI in multiple sclerosis - Onlus" the Ministry of Health in a just concluded meeting between representatives of the association and Albert Zangrilli, president of the second section to the Board of Health in the same ministry. "While science makes its way to validate the correlation between MS and CCSVI - Tobacco said - as, we ask that, since the Ccsvi has already been validated by the scientific world as it has been validated his therapy, the state will face load to implement what the scientific community worldwide has already validated and to draw up guidelines with respect to this disease occur until the science correlation.

Found in several trials around the world in people with multiple sclerosis, CCSVI is a disease that affects the cervical and thoracic veins that because dell'inspessimento anomalous venous walls, remove inefficient blood from the central nervous system. The correlation between the two diseases in Italy is a study whose results, explain the association, are expected at the end of next year. "Today's meeting went very well - added Tobacco - The Ministry has taken note of our request." The timing, however, there are still some news. "On this we had no indications, but the ministry made us know that it will mobilize more quickly." (Ga)

http://www.redattoresociale.it/DettaglioNotizie.aspx?idNews=312625

http://ccsvi-sm.org/?q=node%2F223

http://www.facebook.com/pages/CCSVI-in- ... 7733732210

[nino]

Für den Quellartikel braucht man ein Login.
Ist das eine Zeitung ?

viele Grüße
Nino

[muse]

Welchen link meinst du, nino? Kann sein (I really don't know!), dass man bei facebook nur genauer schauen darf, wenn man registriert ist.
Best
Arne

[bonfire]

The cerebrospinal chronic venous insufficiency (CCSVI) is recognized in Italy as a disease in itself that can be quickly drawn up guidelines to be able to diagnose and treat beyond its correlation with multiple sclerosis.

Das ist ein zentraler Satz. CCSVI wird also 'für sich selbst' als pathologische Kondition anerkannt, und Richtlinien für deren Diagnose und Behandlung sind aufzustellen - ungeachtet eines möglichen Zusammenhangs zu MS.

Das ist genau das, was die Situation erfordert.

[nino]

Diesen Link meine ich:

http://www.redattoresociale.it/DettaglioNotizie.aspx?idNews=312625

Das müßte doch der Original-Artikel zu dem englichen Text sein

Viele Grüße

Nino

[andre275]

Eine Frage: CCSVI ist doch hoffentlich auch in Deutschland als Krankheit anerkannt. Mein Neurologe lässt mich in Kürze daraufhin mittels MR-V untersuchen. Ich hoffe dass wir keinen Ärger mit der Krankenkasse bekommen. Ich hatte doch vorher hier nachgefragt ob Deutschland das Konsensuspapier auch anerkannt hat.

[muse]

Hi Nino, ich habe die Infos über Pino Cucci von der CCSVI-Society bekommen, der den deal mit dem Minister eingefädelt hat und ich kann den link leider auch nicht weiter öffnen, sorry. War gestern alles etwas hektisch für Pino & friends. Hier noch ein paar Übersetzungen vom Italienisch zum Englisch von der Website der Society. http://www.ccsvi-sm.org
Best
Arne


-------------------------------------------------------------------------------------------------------------------------------------------------------------------

Ministry of Health: a meeting with our association.

Times between Science and lifetime.

"I have this morning, led the delegation which met membership, the Ministry of Health, Professor. Enrico Garaci, President Institute of Health, and Professor Albert Zangrilli, President of the Second Session of the Superior Council of Health. I want first of all thank Pino Cucci, by determining that distinguishes it, has made possible today's meeting. They were then with me and the Vice-President Daniel Novi adviser Stephanie Maselli.

We gave, inter alia, a letter of our Honorary President Nicoletta Mantovani with which he wondered why it was not already possible to cure CCSVI in Italy within a structured, when diagnosis and therapy are already subject to guidelines internationally accepted by the entire scientific community that deals with vascular disease and how it may be possible, given the absolute evidence and incontrovertibility a serious malfunction of origin malformation of the veins drain more blood in the brain, which is not given opportunities for people with CCSVI to cure it.

We found players available and attentive and the meeting proved decisive in order to give even our country guidelines in order to design the diagnostic and clinical CCSVI because it shared the idea that, to date, although since there is no formal impediment burden on a vascular surgeon it may consider necessary unblocking vein once diagnosed CCSVI in fact this is currently hindered by the lack of succiatate guidelines. The Association, at the end of the meeting, said she was confident in the commitment to have an initial response very quickly.

So while the scientific community will start to experiment, to validate or not the connection between CCSVI and multiple sclerosis, no one will be prevented from care once established the diagnosis of CCSVI.

We, the health of our country aurita, remembered as the unblocking of the carotid artery to prevent stroke was executed freely around the world while simultaneously randomized studies were performed to determine the firm evidence of effectiveness. The result, in the 90's, when the study was that NASCET sanctioned the usefulness of this surgery, it was realized on the basis of his own results, that at least 50% of patients operated freely meeting did not go to strokes. This precedent is very similar because in that case was only advocated the use of drugs without operation."

The National President Francesco Tobacco

Translation from:
http://www.ccsvi-sm.org/?q=node%2F225


DISABILITY: CCSVI "is recognized as a pathology"

"ROME - The cerebrospinal chronic venous insufficiency (Ccsvi) is recognized in Italy as a disease in itself that can be quickly drawn up guidelines to be able to diagnose and treat beyond its correlation with multiple sclerosis. This is called the association "Ccsvi in multiple sclerosis - Onlus" the Ministry of Health in a just concluded meeting between representatives of the association and Albert Zangrilli, president of the second section to the Board of Health in the same ministry. "While science makes its way to validate the correlation between MS and Ccsvi - Tobacco said - as, we ask that, since the Ccsvi has already been validated by the scientific world as it has been validated his therapy, the state will face load to implement what the scientific community worldwide has already validated and to draw up guidelines with respect to this disease occur until the science correlation.

Found in several trials around the world in people with multiple sclerosis, Ccsvi is a disease that affects the cervical and thoracic veins that because dell'inspessimento anomalous venous walls, remove inefficient blood from the central nervous system. The correlation between the two diseases in Italy is a study whose results, explain the association, are expected at the end of next year."
Translation from:
http://ccsvi-sm.org/?q=node%2F223

[muse]

Andre275, das die Krankheit von den Phlebologen aus D anerkannt ist bedeutet noch lange nicht, dass deren Behandlung auch von den Kassen bezahlt wird, weil die muss ebenfalls anerkannt sein. Das musst du vorher schon abklären. Dasselbe mache ich gerade in NZ, sprich, ich stehe in Verhandlung mit dem Versicherer, dass dieser den Eingriff bezahlt. Schaun wer mal wer am Dienstag am meisten blutet, Ich oder die Kasse.
Best
Arne

[andre275]

@muse: Erstmal gehts ja nur um eine Untersuchung auf CCSVI. Da dürfte doch die Krankenkasse nix gegen haben. Ein normales MRT bekomme ich sowiso zur Verlaufskontrolle.